Confidentiality and Data Security
Our policy and procedures are designed to maintain the confidentiality of your data. However, as with all research, there is a chance that this confidentiality could be breached. We are taking precautions to minimize this risk. We will collect your questionnaire data using Qualtrics—a well established survey platform used by the University. Qualtrics uses state of the art encryption technology to maintain security of the data you enter. You can read more about Qualtrics security practices here. As your data are collected within Qualtrics they will be password protected, with dual authentication required. Within Qualtrics, you will be assigned a randomized participant ID number that will subsequently be used to identify your data. The data files we then store and analyze will be identified with these participant IDs only, and will not contain your personally identifiable information. Your blood sample will be identified with a separate sample ID number. The list connecting these numerical IDs to your identifying information will be kept in a separate password-protected and encrypted file. Only trained research personnel will be granted access to your data. Your name and identifying information will not be used in any publications or presentations that result from these data.